What is Cystic Fibrosis (CF)?
Cystic Fibrosis (CF) is the most common life-threatening recessive genetic condition affecting Australian children. In
CF normal mucus changes to a thick, sticky substance which affects the tiny air passages in the lungs. It also causes problems in the pancreas preventing the release of enzymes needed for the digestion of food. People with CF, even very young children, require vigorous daily physiotherapy to keep their lungs clear and take up to 40 tablets a day to replace digestive enzymes. Cystic Fibrosis is incurable and average life expectancy is mid to late thirties.
What does Cystic Fibrosis NSW (CF NSW) do?
CF NSW provides support and services to people with CF and their carers including: counselling; assistance at home with airway clearance; home and hospital visits; advice regarding entitlements and financial assistance. We promote support within the CF community and run a peer support programme which trains adults with CF to be peer support leaders to provide advice and support for younger people with CF. Our Country Outreach programme provides extra services to people living in remote areas including regular visits by a social worker, a free call telephone service and a country clinic
outreach programme. CF NSW makes a significant contribution each year to the Australian Cystic Fibrosis Research Trust to fund research relating to CF; including its cause, treatment and sociological factors.
Furthermore CF NSW advocates for the CF Community, seeks to increase public awareness and provides information to the CF community and the wider public.
CFNSW would like to thank Ritchies for their generous support. CFNSW relies on donations from companies and individuals to enable us to support the CF community. If you would also like to help raise funds for CFNSW you can do so by nominating CFNSW when you apply for your Community Benefits Card. Our number is 91596.